UNMET REQUIREMENTS: CAREGIVERS OF PATIENTS WITH ALZHEIMER'S DISEASE AND RELATED DEMENTIA UNDERGOING SURGERY IN THE COVID-19 PANDEMIC
Öz
The study used a qualitative design to examine the experiences of caregivers of patients Alzheimer's disease and related dementia who underwent surgery during the COVID-19 pandemic. The sample of the study consisted of 21 caregivers who met the inclusion criteria of the study. The data were obtained through in-depth interviews via mobile phone. The data were analyzed by following Collazzi's seven-stage method.11 sub-themes and 3 themes were created: difficulties experienced during the pandemic period, emotions experienced during the pandemic period, and coping strategies during the pandemic period. It has been shown that These caregivers, who have a high burden of care even in normal times, faced many difficulties and were negatively affected emotionally due to the surgery of their patients during the pandemic period. The nurse should know the daily life, social supports, social conditions, and ways of coping with the problems of the caregiver of the elderly person with Alzheimer's disease and related dementia. If caregivers' experiences, social supports, social conditions, and ways of coping with the problems and difficulties are known, home care strategies can be developed to manage these difficulties.
Anahtar Kelimeler
Alzheimer dementia Caregivers Surgery COVID-19 Life experiences
Kaynakça
- 1World Health Organization (WHO). CoronavirusDisease (COVID-19) Pandemic. 2021. https://www.who.int/emergencies/diseases/novel-coronavirus-2019
- Lloyd-Sherlock P, Ebrahim S, Geffen L, McKee M. Bearing the brunt of covid-19: Older people in low and middle income countries. BMJ 2020;368:1–2.
- Wang H, Li T, Barbarino P, et al. Dementia care during COVID-19.The Lancet 2020;395(10231):1190-1191.
- Etard JF, Vanhems P, Atlani-Duault L, Ecochard R. Potential lethal outbreak of coronavirus disease (COVID-19) among the elderly in retirement homes and long-term facilities, France, March 2020. Euro Surveill 2020;25(15):8-10.
- Bianchetti A, Rozzini R, Guerini F, Boffelli S, Ranieri P, Minelli G, et al. Clinical presentation of covid-19 in dementia patients. J Nutr Health Aging 2020;24(6):560–562.
- Alzheimer’s Association. Coronavirus (COVID-19): Tips for Dementia Caregivers. 2020. https://www.alz.org/help-support/caregiving/coronavirus-(covid-19)-tips-for-dementia-care
- Alzheimer Europe. Alzheimer Europe Recommendations on Promoting the Wellbeing of People with Dementia and Carers During the COVID-19 Pandemic. Luxemburg: Alzheimer Europe. 2020.https://www.alzheimer-europe.org/Policy/Our-opinion-on/2020-Wellbeing-of-people-with-dementia-during-COVID-19-pandemic
- Chan EYY, Gobat N, Kim JH, et al. Informal home care providers: the forgotten health-care workers during the COVID-19 pandemic. The Lancet 2020;395(10242):1957-1959.
- Grillo GPM, Marins AMF, Melo R. The family caregiver’s discourse on the hospitalization of the elderly with Alzheimer’s disease. Rev Fun Care Online 2017; 9(4):1068-1073.
- Shen MH, Yang CT, Wu CC, et al. Resuming normal life as a family caregiver during drip‐like recovery of older persons with cognitive impairment recovering from hip surgery: A grounded theory. J Nurs Scholarsh2020;52(3):250-260.
- Alam A, Hana Z, Jin Z, Suen KC, Ma D. Surgery, neuroinflammation and cognitive impairment. EBioMedicine2018;37:547-556.
- Evered L, Scott DA, Silbert B. Cognitive decline associated with anesthesia and surgery in the elderly: Does this contribute to dementia prevalence? Current opinion in psychiatry2017;30(3):220-226.
- Aneja A, Zuelzer DA, Moghadamian ES, Kates SL. Alzheimer dementia in the orthopaedic patient. J Am Acad Orthop Surg 2019;27(7):311-318.
- Mok VCT, Pendlebury S, Wong A, et al. Tackling challenges in care of Alzheimer’s disease and other dementias amid the COVID-19 pandemic, now and in the future. Alzheimer’s and Dementia 2020;16(11):1571-1581.
- Bacsu JDR, O’Connell ME, Webster C, et al. A scoping review of COVID-19 experiences of people living with dementia. Can J Public Health 2021;112(3):400-411.
- Vaitheswaran S, Lakshminarayanan M, Ramanujam V, Sargunan S, Venkatesan S. Experiences and needs of caregivers of persons with dementia in India during the COVID-19 pandemic: A qualitative study. Am J Geriatr Psychiatry 2020;28(11):1185–1194.
- Cagnin A, Di Lorenzo R, Marra C, et al. Behavioral and psychological effects of coronavirus disease-19 quarantine in patients with dementia. Front Psychiatry 2020;11:1-15.
- Brown EE, Kumar S, Rajji TK, Pollock BG, Mulsant BH. Anticipating and mitigating the impact of the COVID-19 pandemic on Alzheimer's disease and related dementias. Am J Geriatr Psychiatry 2020;28(7):712-721.
- Guest G, Bunce A, Johnson L. How many interviews are enough? An experiment with data saturation and variability. Field methods 2006;18(1):59-82.
- Fusch PI, Ness LR. Are we there yet? Data saturation in qualitative research. The qualitative report 2015;20(9):1408.
- Colaizzi PF. Psychological research as the phenomenologist views it. In R. Valle, & M. King (Eds.), Existential phenomenological alterations for psychology. Oxford University Press 1978;48-71.
- Colorafi KJ, Evans B. Qualitative descriptive methods in health science research. HERD2016;9:16-25.
- Esandi N, Nolan M, Canga-Armayor N, Pardavila-Belio MI, Canga-Armayor A. Family Dynamics and the Alzheimer’s disease experience. J Fam Nurs 2021;27(2):124-135.
- Akyol MA, Küçükgüçlü Ö, Akpınar Söylemez B. People with Dementıa during COVID-19 pandemic: recommendations for health professionals and caregivers. DEUHFED 2021;14(3): 277-282
- Umucu E, Lee B. Examining the impact of COVID-19 on stress and coping strategies in individuals with disabilities and chronic conditions. Rehabil Psychol 2020;65(3):193-198. Epub 2020 May 14. PMID: 32406739.
- Oh ST, Park JY. Postoperative delirium. Korean J Anesthesiol2019;72(1):4.
- Mazzi MC, Iavarone A, Musella C, et al. Time of isolation, education and gender influence the psychological outcome during COVID-19 lockdown in caregivers of patients with dementia. Eur Geriatr Med2020;11(6):1095-1098.
- Carrier FM, Amzallag É, Lecluyse V, et al. Postoperative outcomes in surgical COVID-19 patients: A multicenter cohort study. BMC Anesthesiol2021;21(1):1-8.
- Akbuga GAA, Surme Y. Surgery of patients with COVID-19: Perioperative defense.Turkish Journal of Science and Health2021;2(1):16-21.
- Zucca M, Isella V, Lorenzo RD,et al. Being the family caregiver of a patient with dementia during the Coronavirus Disease 2019 Lockdown. Front Aging Neurosci2021;13:132.
- Anderson JG, Bartmess M, Hundt E, Jacelon C. “A Little Bit of Their Souls”: investigating the concept of dignity for people living with Dementia using caregivers’ blogs. J Fam Nurs2021;27(1):43-54.
KARŞILANMAYAN GEREKSİNİMLER: PANDEMİ DÖNEMİNDE AMELİYAT OLAN ALZHEİMER VE İLİŞKİLİ DEMANS HASTA YAKINLARI
Öz
Çalışma, COVID-19 pandemisi sırasında ameliyat olan Alzheimer hastalığı ve buna bağlı Demans hastalarının bakım vericilerinin deneyimlerini incelemek için nitel olarak yapıldı.Araştırmanın örneklemini, dahil edilme kriterlerine uyan 21 bakım vericioluşturdu. Veriler, cep telefonu aracılığıyla derinlemesine bireysel görüşme ile toplandı.Veriler Collazzi'nin yedi aşamalı yöntemi izlenerek analiz edildi. Pandemi döneminde yaşanan zorluklar, pandemi döneminde yaşanan duygular ve pandemi döneminde baş etme stratejileri olmak üzere 3 tema ve 11 alt tema oluşturuldu.Normal zamanlarda dahi bakım yükü yüksek olan bu bakım vericiler, pandemi döneminde hastalarının ameliyat olması nedeniyle birçok zorlukla karşılaşmış ve duygusal olarak olumsuz etkilenmiştir.Hemşire, Alzheimer hastalığı ve buna bağlı Demans hastalarınınbakım vericilerinin günlük yaşamını, sosyal desteklerini, sosyal koşullarını ve sorunlarla baş etme yollarını bilmelidir. Bakım verenlerin deneyimleri, sosyal destekleri, sosyal koşulları, sorunlarla baş etme yolları ve yaşadıkları güçlükler bilinirse, bu güçlükleri yönetmek için evde bakım stratejileri geliştirilebilir.
Anahtar Kelimeler
Alzheimer demansı Bakım vericiler Cerrahi COVID-19 yaşam deneyimleri
Kaynakça
- 1World Health Organization (WHO). CoronavirusDisease (COVID-19) Pandemic. 2021. https://www.who.int/emergencies/diseases/novel-coronavirus-2019
- Lloyd-Sherlock P, Ebrahim S, Geffen L, McKee M. Bearing the brunt of covid-19: Older people in low and middle income countries. BMJ 2020;368:1–2.
- Wang H, Li T, Barbarino P, et al. Dementia care during COVID-19.The Lancet 2020;395(10231):1190-1191.
- Etard JF, Vanhems P, Atlani-Duault L, Ecochard R. Potential lethal outbreak of coronavirus disease (COVID-19) among the elderly in retirement homes and long-term facilities, France, March 2020. Euro Surveill 2020;25(15):8-10.
- Bianchetti A, Rozzini R, Guerini F, Boffelli S, Ranieri P, Minelli G, et al. Clinical presentation of covid-19 in dementia patients. J Nutr Health Aging 2020;24(6):560–562.
- Alzheimer’s Association. Coronavirus (COVID-19): Tips for Dementia Caregivers. 2020. https://www.alz.org/help-support/caregiving/coronavirus-(covid-19)-tips-for-dementia-care
- Alzheimer Europe. Alzheimer Europe Recommendations on Promoting the Wellbeing of People with Dementia and Carers During the COVID-19 Pandemic. Luxemburg: Alzheimer Europe. 2020.https://www.alzheimer-europe.org/Policy/Our-opinion-on/2020-Wellbeing-of-people-with-dementia-during-COVID-19-pandemic
- Chan EYY, Gobat N, Kim JH, et al. Informal home care providers: the forgotten health-care workers during the COVID-19 pandemic. The Lancet 2020;395(10242):1957-1959.
- Grillo GPM, Marins AMF, Melo R. The family caregiver’s discourse on the hospitalization of the elderly with Alzheimer’s disease. Rev Fun Care Online 2017; 9(4):1068-1073.
- Shen MH, Yang CT, Wu CC, et al. Resuming normal life as a family caregiver during drip‐like recovery of older persons with cognitive impairment recovering from hip surgery: A grounded theory. J Nurs Scholarsh2020;52(3):250-260.
- Alam A, Hana Z, Jin Z, Suen KC, Ma D. Surgery, neuroinflammation and cognitive impairment. EBioMedicine2018;37:547-556.
- Evered L, Scott DA, Silbert B. Cognitive decline associated with anesthesia and surgery in the elderly: Does this contribute to dementia prevalence? Current opinion in psychiatry2017;30(3):220-226.
- Aneja A, Zuelzer DA, Moghadamian ES, Kates SL. Alzheimer dementia in the orthopaedic patient. J Am Acad Orthop Surg 2019;27(7):311-318.
- Mok VCT, Pendlebury S, Wong A, et al. Tackling challenges in care of Alzheimer’s disease and other dementias amid the COVID-19 pandemic, now and in the future. Alzheimer’s and Dementia 2020;16(11):1571-1581.
- Bacsu JDR, O’Connell ME, Webster C, et al. A scoping review of COVID-19 experiences of people living with dementia. Can J Public Health 2021;112(3):400-411.
- Vaitheswaran S, Lakshminarayanan M, Ramanujam V, Sargunan S, Venkatesan S. Experiences and needs of caregivers of persons with dementia in India during the COVID-19 pandemic: A qualitative study. Am J Geriatr Psychiatry 2020;28(11):1185–1194.
- Cagnin A, Di Lorenzo R, Marra C, et al. Behavioral and psychological effects of coronavirus disease-19 quarantine in patients with dementia. Front Psychiatry 2020;11:1-15.
- Brown EE, Kumar S, Rajji TK, Pollock BG, Mulsant BH. Anticipating and mitigating the impact of the COVID-19 pandemic on Alzheimer's disease and related dementias. Am J Geriatr Psychiatry 2020;28(7):712-721.
- Guest G, Bunce A, Johnson L. How many interviews are enough? An experiment with data saturation and variability. Field methods 2006;18(1):59-82.
- Fusch PI, Ness LR. Are we there yet? Data saturation in qualitative research. The qualitative report 2015;20(9):1408.
- Colaizzi PF. Psychological research as the phenomenologist views it. In R. Valle, & M. King (Eds.), Existential phenomenological alterations for psychology. Oxford University Press 1978;48-71.
- Colorafi KJ, Evans B. Qualitative descriptive methods in health science research. HERD2016;9:16-25.
- Esandi N, Nolan M, Canga-Armayor N, Pardavila-Belio MI, Canga-Armayor A. Family Dynamics and the Alzheimer’s disease experience. J Fam Nurs 2021;27(2):124-135.
- Akyol MA, Küçükgüçlü Ö, Akpınar Söylemez B. People with Dementıa during COVID-19 pandemic: recommendations for health professionals and caregivers. DEUHFED 2021;14(3): 277-282
- Umucu E, Lee B. Examining the impact of COVID-19 on stress and coping strategies in individuals with disabilities and chronic conditions. Rehabil Psychol 2020;65(3):193-198. Epub 2020 May 14. PMID: 32406739.
- Oh ST, Park JY. Postoperative delirium. Korean J Anesthesiol2019;72(1):4.
- Mazzi MC, Iavarone A, Musella C, et al. Time of isolation, education and gender influence the psychological outcome during COVID-19 lockdown in caregivers of patients with dementia. Eur Geriatr Med2020;11(6):1095-1098.
- Carrier FM, Amzallag É, Lecluyse V, et al. Postoperative outcomes in surgical COVID-19 patients: A multicenter cohort study. BMC Anesthesiol2021;21(1):1-8.
- Akbuga GAA, Surme Y. Surgery of patients with COVID-19: Perioperative defense.Turkish Journal of Science and Health2021;2(1):16-21.
- Zucca M, Isella V, Lorenzo RD,et al. Being the family caregiver of a patient with dementia during the Coronavirus Disease 2019 Lockdown. Front Aging Neurosci2021;13:132.
- Anderson JG, Bartmess M, Hundt E, Jacelon C. “A Little Bit of Their Souls”: investigating the concept of dignity for people living with Dementia using caregivers’ blogs. J Fam Nurs2021;27(1):43-54.
Ayrıntılar
| Birincil Dil | İngilizce |
|---|---|
| Konular | Hemşirelik |
| Bölüm | Araştırma Makalesi |
| Yazarlar | |
| Erken Görünüm Tarihi | 3 Ağustos 2023 |
| Yayımlanma Tarihi | 4 Ağustos 2023 |
| Gönderilme Tarihi | 3 Ağustos 2022 |
| Yayımlandığı Sayı | Yıl 2023 Cilt: 32 Sayı: 2 |
