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Yıl 2023, Cilt: 6 Sayı: 2, 111 - 118, 27.06.2023

Güleser Güney Yılmaz Hatice Abaoğlu Tarık Demirok Esra Akı

https://doi.org/10.33438/ijdshs.1252793

Öz

Anahtar Kelimeler

occupational balance quality of life children with VI caregiver

Kaynakça

  • Anaby, D., Jarus, T., Backman, C. L., & Zumbo, B. D. (2010). The role of occupational characteristics and occupational imbalance in explaining well-being. Applied Research in Quality of Life, 5, 81-104.
  • Barrozo, B. M., Rubo Nobre, M. I., & de Cássia Ieto Montilha, R. (2015). Changes in occupational roles of caregivers of persons with disabilities visual. Journal of Occupational Therapy of University of São Paulo/Revista de Terapia Ocupacional da Universidade de São Paulo, 26(3).
  • Bejerholm, U. (2010). Occupational balance in people with schizophrenia. Occupational Therapy in Mental Health, 26(1), 1-17.
  • Braich, P. S., Lal, V., Hollands, S., & Almeida, D. R. (2012). Burden and depression in the caregivers of blind patients in India. Ophthalmology, 119(2), 221-226.
  • Dalvand, H., Hosseini, S. A., Rassafiani, M., Samadi, S. A., Khankeh, H. R., & Kelly, G. (2015). Co-occupations: The caregiving challenges of mothers of children with cerebral palsy. British Journal of Occupational Therapy, 78(7), 450-459.
  • Donovan, J. M., VanLeit, B. J., Crowe, T. K., & Keefe, E. B. (2005). Occupational goals of mothers of children with disabilities: Influence of temporal, social, and emotional contexts. The American Journal of Occupational Therapy, 59(3), 249-261.
  • Elgendy, M., Sik-Lanyi, C., & Kelemen, A. (2019). Making shopping easy for people with visual impairment using mobile assistive technologies. Applied Sciences, 9(6), 1061.
  • Engelen, A. M. (2017). Occupational balance of mothers and fathers raising a child with special needs in Flanders (Doctoral dissertation, Stellenbosch: Stellenbosch University).
  • Eser E, Fidaner H, Fidaner C, Eser SY, Elbi H, & Göker E. (1999). Psychometric properties of WHOQOL-100 and WHOQOL BREF. 3P. 7(Suppl 2), 23-40.
  • Extremera, N., & Rey, L. (2014). Health-related quality of life and cognitive emotion regulation strategies in the unemployed: a cross-sectional survey. Health and quality of life outcomes, 12(1), 1-9.
  • Günal, A., Pekçetin, S., Demirtürk, F., Şenol, H., Håkansson, C., & Wagman, P. (2020). Validity and reliability of the Turkish occupational balance questionnaire (OBQ11-T). Scandinavian journal of occupational therapy, 27(7), 493-499.
  • Güney Yılmaz, G., Avcı, H., & Akı, E. (2022). A new tool to measure occupational balance: Adolescent Occupational Balance Scale (A-OBS). Scandinavian Journal of Occupational Therapy, 1-14.
  • Håkansson, C., Wagman, P., & Hagell, P. (2020). Construct validity of a revised version of the Occupational Balance Questionnaire. Scandinavian Journal of Occupational Therapy, 27(6), 441-449.
  • Houwen, S., Visscher, C., Hartman, E., & Lemmink, K. A. (2007). Gross motor skills and sports participation of children with visual impairments. Research Quarterly for Exercise and Sport, 78(2), 16-23.
  • Kantipuly, A., Pillai, M. R., Shroff, S., Khatiwala, R., Raman, G. V., Krishnadas, S. R., ... & Ehrlich, J. R. (2019). Caregiver burden in primary congenital glaucoma. American journal of ophthalmology, 205, 106-114.
  • Kilangalanga, N. J., Nsiangani, L. N., Dilu, A. A., Moanda, K. A., Ilunga, M. J., Makwanga, M. E., & Guthoff, R. (2020). Epidemiology of childhood blindness and low vision in Kinshasa–democratic Republic of the Congo. Ophthalmic Epidemiology, 27(1), 45-51.
  • Kuo, D. Z., Cohen, E., Agrawal, R., Berry, J. G., & Casey, P. H. (2011). A national profile of caregiver challenges among more medically complex children with special health care needs. Archives of pediatrics & adolescent medicine, 165(11), 1020-1026.
  • Kuriakose, R. K., Khan, Z., Almeida, D. R., & Braich, P. S. (2017). Depression and burden among the caregivers of visually impaired patients: a systematic review. International Ophthalmology, 37, 767-777.
  • Lupón, M., Armayones, M., & Cardona, G. (2018). Quality of life among parents of children with visual impairment: A literature review. Research in developmental disabilities, 83, 120-131.
  • McGuire, B. K., Crowe, T. K., Law, M., & VanLeit, B. (2004). Mothers of children with disabilities: Occupational concerns and solutions. OTJR: Occupation, Participation and Health, 24(2), 54-63.
  • Whoqol Group. (1998). Development of the World Health Organization WHOQOL-BREF quality of life assessment. Psychological medicine, 28(3), 551-558.
  • Perkins, K., Columna, L., Lieberman, L., & Bailey, J. (2013). Parents’ perceptions of physical activity for their children with visual impairments. Journal of Visual Impairment & Blindness, 107(2), 131-142.
  • Rainey, L., Elsman, E. B. M., van Nispen, R. M. A., van Leeuwen, L. M., & van Rens, G. H. M. B. (2016). Comprehending the impact of low vision on the lives of children and adolescents: a qualitative approach. Quality of Life Research, 25, 2633-2643.
  • Sola-Carmona, J. J., López-Liria, R., Padilla-Góngora, D., Daza, M. T., Aguilar-Parra, J. M., & Salido-Campos, M. Á. (2016). Factors associated with the anxiety, subjective psychological well-being and self-esteem of parents of blind children. PloS one, 11(9), e0162294.
  • Tröster, H. (2001). Sources of stress in mothers of young children with visual impairments. Journal of Visual Impairment & Blindness, 95(10), 623-637.
  • Van Cleave, J. (2015). Children with special health care needs: with population-based data, better individual care plans. Pediatrics, 135(4), e1040-e1041.
  • Wagman, P., Håkansson, C., & Björklund, A. (2012). Occupational balance as used in occupational therapy: A concept analysis. Scandinavian journal of occupational therapy, 19(4), 322-327.
  • Wagman, P., & Håkansson, C. (2014). Exploring occupational balance in adults in Sweden. Scandinavian journal of occupational therapy, 21(6), 415-420.
  • Wagman, P., & Håkansson, C. (2014). Introducing the occupational balance questionnaire (OBQ). Scandinavian journal of occupational therapy, 21(3), 227-231.
  • Wanberg, C. R. (2012). The individual experience of unemployment. Annual review of psychology, 63, 369-396.
  • WHO (2022) Blindness and vision impairment, available from: https://www.who.int/news-room/fact-sheets/detail/blindness-and-visual-impairment
  • Ya-Otto, C. K., Tobias, E. I., & Mashego-Brown, A. (2013). Responses, coping strategies and needs of primary and secondary caregivers of children with visual impairments in Namibia: Teachers and parents perspectives

Caregiving Children with Visually Impairments: Occupational Balance and Quality of Life Perspective

Yıl 2023, Cilt: 6 Sayı: 2, 111 - 118, 27.06.2023

Güleser Güney Yılmaz Hatice Abaoğlu Tarık Demirok Esra Akı

https://doi.org/10.33438/ijdshs.1252793

Öz

Several studies have shown that caregivers of children (COC) with special needs have their occupational balance (OB) or quality of life (QOL) worsening. However, the OB and QOL of COC with visual impairment are not adequately investigated. Fifty-nine participants who were the primary COC who were diagnosed with either low vision (LV) or blindness completed the study. Occupational Balance Questionerrie Turkish version and the WHO Quality of Life Scale-Short Form Turkish version were applied. The correlation analysis was used to test the correlation between the OB and QOL scores. The Mann-Whitney U used for comparing OB and QOL scores between the COC with LV and blindness. There was a positive correlation between caregivers' OB and QOL (r=0.600; p>0.05). There was no statistically significant difference between OB and QOL of the two groups of caregivers (p>0.05). There are many issues that occupational therapists should support and investigate about this family. We think that the quality of life, balance of activity and efficient use of the time of COC with VI should be further investigated by occupational therapists.

Anahtar Kelimeler

occupational balance quality of life children with VI caregiver

Kaynakça

  • Anaby, D., Jarus, T., Backman, C. L., & Zumbo, B. D. (2010). The role of occupational characteristics and occupational imbalance in explaining well-being. Applied Research in Quality of Life, 5, 81-104.
  • Barrozo, B. M., Rubo Nobre, M. I., & de Cássia Ieto Montilha, R. (2015). Changes in occupational roles of caregivers of persons with disabilities visual. Journal of Occupational Therapy of University of São Paulo/Revista de Terapia Ocupacional da Universidade de São Paulo, 26(3).
  • Bejerholm, U. (2010). Occupational balance in people with schizophrenia. Occupational Therapy in Mental Health, 26(1), 1-17.
  • Braich, P. S., Lal, V., Hollands, S., & Almeida, D. R. (2012). Burden and depression in the caregivers of blind patients in India. Ophthalmology, 119(2), 221-226.
  • Dalvand, H., Hosseini, S. A., Rassafiani, M., Samadi, S. A., Khankeh, H. R., & Kelly, G. (2015). Co-occupations: The caregiving challenges of mothers of children with cerebral palsy. British Journal of Occupational Therapy, 78(7), 450-459.
  • Donovan, J. M., VanLeit, B. J., Crowe, T. K., & Keefe, E. B. (2005). Occupational goals of mothers of children with disabilities: Influence of temporal, social, and emotional contexts. The American Journal of Occupational Therapy, 59(3), 249-261.
  • Elgendy, M., Sik-Lanyi, C., & Kelemen, A. (2019). Making shopping easy for people with visual impairment using mobile assistive technologies. Applied Sciences, 9(6), 1061.
  • Engelen, A. M. (2017). Occupational balance of mothers and fathers raising a child with special needs in Flanders (Doctoral dissertation, Stellenbosch: Stellenbosch University).
  • Eser E, Fidaner H, Fidaner C, Eser SY, Elbi H, & Göker E. (1999). Psychometric properties of WHOQOL-100 and WHOQOL BREF. 3P. 7(Suppl 2), 23-40.
  • Extremera, N., & Rey, L. (2014). Health-related quality of life and cognitive emotion regulation strategies in the unemployed: a cross-sectional survey. Health and quality of life outcomes, 12(1), 1-9.
  • Günal, A., Pekçetin, S., Demirtürk, F., Şenol, H., Håkansson, C., & Wagman, P. (2020). Validity and reliability of the Turkish occupational balance questionnaire (OBQ11-T). Scandinavian journal of occupational therapy, 27(7), 493-499.
  • Güney Yılmaz, G., Avcı, H., & Akı, E. (2022). A new tool to measure occupational balance: Adolescent Occupational Balance Scale (A-OBS). Scandinavian Journal of Occupational Therapy, 1-14.
  • Håkansson, C., Wagman, P., & Hagell, P. (2020). Construct validity of a revised version of the Occupational Balance Questionnaire. Scandinavian Journal of Occupational Therapy, 27(6), 441-449.
  • Houwen, S., Visscher, C., Hartman, E., & Lemmink, K. A. (2007). Gross motor skills and sports participation of children with visual impairments. Research Quarterly for Exercise and Sport, 78(2), 16-23.
  • Kantipuly, A., Pillai, M. R., Shroff, S., Khatiwala, R., Raman, G. V., Krishnadas, S. R., ... & Ehrlich, J. R. (2019). Caregiver burden in primary congenital glaucoma. American journal of ophthalmology, 205, 106-114.
  • Kilangalanga, N. J., Nsiangani, L. N., Dilu, A. A., Moanda, K. A., Ilunga, M. J., Makwanga, M. E., & Guthoff, R. (2020). Epidemiology of childhood blindness and low vision in Kinshasa–democratic Republic of the Congo. Ophthalmic Epidemiology, 27(1), 45-51.
  • Kuo, D. Z., Cohen, E., Agrawal, R., Berry, J. G., & Casey, P. H. (2011). A national profile of caregiver challenges among more medically complex children with special health care needs. Archives of pediatrics & adolescent medicine, 165(11), 1020-1026.
  • Kuriakose, R. K., Khan, Z., Almeida, D. R., & Braich, P. S. (2017). Depression and burden among the caregivers of visually impaired patients: a systematic review. International Ophthalmology, 37, 767-777.
  • Lupón, M., Armayones, M., & Cardona, G. (2018). Quality of life among parents of children with visual impairment: A literature review. Research in developmental disabilities, 83, 120-131.
  • McGuire, B. K., Crowe, T. K., Law, M., & VanLeit, B. (2004). Mothers of children with disabilities: Occupational concerns and solutions. OTJR: Occupation, Participation and Health, 24(2), 54-63.
  • Whoqol Group. (1998). Development of the World Health Organization WHOQOL-BREF quality of life assessment. Psychological medicine, 28(3), 551-558.
  • Perkins, K., Columna, L., Lieberman, L., & Bailey, J. (2013). Parents’ perceptions of physical activity for their children with visual impairments. Journal of Visual Impairment & Blindness, 107(2), 131-142.
  • Rainey, L., Elsman, E. B. M., van Nispen, R. M. A., van Leeuwen, L. M., & van Rens, G. H. M. B. (2016). Comprehending the impact of low vision on the lives of children and adolescents: a qualitative approach. Quality of Life Research, 25, 2633-2643.
  • Sola-Carmona, J. J., López-Liria, R., Padilla-Góngora, D., Daza, M. T., Aguilar-Parra, J. M., & Salido-Campos, M. Á. (2016). Factors associated with the anxiety, subjective psychological well-being and self-esteem of parents of blind children. PloS one, 11(9), e0162294.
  • Tröster, H. (2001). Sources of stress in mothers of young children with visual impairments. Journal of Visual Impairment & Blindness, 95(10), 623-637.
  • Van Cleave, J. (2015). Children with special health care needs: with population-based data, better individual care plans. Pediatrics, 135(4), e1040-e1041.
  • Wagman, P., Håkansson, C., & Björklund, A. (2012). Occupational balance as used in occupational therapy: A concept analysis. Scandinavian journal of occupational therapy, 19(4), 322-327.
  • Wagman, P., & Håkansson, C. (2014). Exploring occupational balance in adults in Sweden. Scandinavian journal of occupational therapy, 21(6), 415-420.
  • Wagman, P., & Håkansson, C. (2014). Introducing the occupational balance questionnaire (OBQ). Scandinavian journal of occupational therapy, 21(3), 227-231.
  • Wanberg, C. R. (2012). The individual experience of unemployment. Annual review of psychology, 63, 369-396.
  • WHO (2022) Blindness and vision impairment, available from: https://www.who.int/news-room/fact-sheets/detail/blindness-and-visual-impairment
  • Ya-Otto, C. K., Tobias, E. I., & Mashego-Brown, A. (2013). Responses, coping strategies and needs of primary and secondary caregivers of children with visual impairments in Namibia: Teachers and parents perspectives
Toplam 32 adet kaynakça vardır.

Ayrıntılar

Birincil Dil İngilizce
Konular Engelliler için Beden Eğitimi, Spor ve Fiziksel Aktivite
Bölüm Original Article
Yazarlar

Güleser Güney Yılmaz 0000-0003-1781-9381

Hatice Abaoğlu 0000-0001-8060-3730

Tarık Demirok 0000-0001-6338-3465

Esra Akı 0000-0002-5806-6518

Erken Görünüm Tarihi 1 Mayıs 2023
Yayımlanma Tarihi 27 Haziran 2023
Yayımlandığı Sayı Yıl 2023 Cilt: 6 Sayı: 2

Kaynak Göster

APA Güney Yılmaz, G., Abaoğlu, H., Demirok, T., Akı, E. (2023). Caregiving Children with Visually Impairments: Occupational Balance and Quality of Life Perspective. International Journal of Disabilities Sports and Health Sciences, 6(2), 111-118. https://doi.org/10.33438/ijdshs.1252793
AMA Güney Yılmaz G, Abaoğlu H, Demirok T, Akı E. Caregiving Children with Visually Impairments: Occupational Balance and Quality of Life Perspective. International Journal of Disabilities Sports and Health Sciences. Haziran 2023;6(2):111-118. doi:10.33438/ijdshs.1252793
Chicago Güney Yılmaz, Güleser, Hatice Abaoğlu, Tarık Demirok, ve Esra Akı. “Caregiving Children With Visually Impairments: Occupational Balance and Quality of Life Perspective”. International Journal of Disabilities Sports and Health Sciences 6, sy. 2 (Haziran 2023): 111-18. https://doi.org/10.33438/ijdshs.1252793.
EndNote Güney Yılmaz G, Abaoğlu H, Demirok T, Akı E (01 Haziran 2023) Caregiving Children with Visually Impairments: Occupational Balance and Quality of Life Perspective. International Journal of Disabilities Sports and Health Sciences 6 2 111–118.
IEEE G. Güney Yılmaz, H. Abaoğlu, T. Demirok, ve E. Akı, “Caregiving Children with Visually Impairments: Occupational Balance and Quality of Life Perspective”, International Journal of Disabilities Sports and Health Sciences, c. 6, sy. 2, ss. 111–118, 2023, doi: 10.33438/ijdshs.1252793.
ISNAD Güney Yılmaz, Güleser vd. “Caregiving Children With Visually Impairments: Occupational Balance and Quality of Life Perspective”. International Journal of Disabilities Sports and Health Sciences 6/2 (Haziran 2023), 111-118. https://doi.org/10.33438/ijdshs.1252793.
JAMA Güney Yılmaz G, Abaoğlu H, Demirok T, Akı E. Caregiving Children with Visually Impairments: Occupational Balance and Quality of Life Perspective. International Journal of Disabilities Sports and Health Sciences. 2023;6:111–118.
MLA Güney Yılmaz, Güleser vd. “Caregiving Children With Visually Impairments: Occupational Balance and Quality of Life Perspective”. International Journal of Disabilities Sports and Health Sciences, c. 6, sy. 2, 2023, ss. 111-8, doi:10.33438/ijdshs.1252793.
Vancouver Güney Yılmaz G, Abaoğlu H, Demirok T, Akı E. Caregiving Children with Visually Impairments: Occupational Balance and Quality of Life Perspective. International Journal of Disabilities Sports and Health Sciences. 2023;6(2):111-8.
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