Derleme
Telerehabilitation in Children with Disabilities in the COVID-19 Pandemic from the Perspective of Families and Clinicians: Review
Öz
The COVID-19 pandemic has disproportionately affected specific groups since it first emerged. After the precautions were taken, individuals had to rearrange their daily lives and routines. Due to the higher incidence of COVID-19 disease among elderly individuals, children with disability, who are a vulnerable population, have not been the focus of discussions related to the pandemic. The rapid global spread of the COVID-19 pandemic has required education and health systems to develop new strategies and experience changes. In the health system, many institutions have switched to rapidly expanding telehealth infrastructure and applications. Telerehabilitation services for children with disability are an alternative to face-to-face clinical health services. Telerehabilitation has many advantages such as overcoming geographical barriers and reducing treatment costs, but it also has disadvantages such as low usage rate, low acceptance level by clinicians, and service payments.
Our study aims to review the problems and developed solutions for rehabilitation applications in children with a disability during the COVID-19 pandemic, to examine the telerehabilitation applications, which are widely used in the pandemic process, from the perspective of families and clinicians, and to summarize innovative approaches and strategies for clinicians and researchers working in the field.
Anahtar Kelimeler
Kaynakça
- World Health Organization (WHO) Coronavirus disease (COVID-2019) situation reports (2020) (Internet). Available from: https://www.who.int/emergencies/diseases/novel-coronavirus-2019/situation-reports (cited 2022, April 11).
- Battistin T, Mercuriali E, Zanardo V, Gregori D, Lorenzoni G, Nasato L, et al. Distance support and online intervention to blind and visually impaired children during the pandemic COVID-19. Res Dev Disabil. 2021; 108: 103816.
- Riphagen S, Gomez X, Gonzalez-Martinez C, Wilkinson N, Theocharis P. Hyperinflammatory shock in children during COVID-19 pandemic. Lancet. 2020; 395(10237) :1607-8.
- Gupta S, Smith L, Diakiw A. Avoidance of COVID-19 for children and adolescents and ısolation precautions. Pediatr Clin North Am. 2021; 68(5): 1103-18.
- Patel PD, Cobb J, Wright D, Turer RW, Jordan T, Humphrey A, et al. Rapid development of telehealth capabilities within pediatric patient portal infrastructure for COVID-19 care: barriers, solutions, results. J Am Med Inform Assoc. 2020; 27(7): 1116-20.
- Akcay E, Başgül ŞS. Pandemi ve özel gereksinimi olan/risk altındaki çocuklar. Ercan ES, Yektaş Ç, Tufan AE, Bilaç Ö, editörler, COVID-19 Pandemisi ve Çocuk ve Ergen Ruh Sağlığı, 1. Baskı. Ankara: Türkiye Klinikleri, 2020, p.55-61.
- Phua J, Weng L, Ling L, Egi M, Lim CM, Divatia JV, et al. Asian Critical Care Clinical Trials Group. Intensive care management of coronavirus disease 2019 (COVID-19): challenges and recommendations. Lancet Respir Med. 2020; 8(5): 506-17.
- Doraiswamy S, Abraham A, Mamtani R, Cheema S. Use of telehealth during the COVID-19 pandemic: scoping review. J Med Internet Res. 2020; 22(12): e24087.
- Guide to measuring information and communication technologies (ICT) in education. UNESCO Institute for Statistics. URL: http://uis.unesco.org/sites/default/files/documents/guide-to-measuring-information-and-communication-technologies-ict-in-education-en_0.pdf (accessed 2023-06-16)
- Telemedicine and Telehealth|HealthIT.gov. Available online: https://www.healthit.gov/topic/health-it-initiatives/telemedicine-and-telehealth (accessed on 12 April 2023) .
- Garg S, Kim L, Whitaker M, O’Halloran A, Cummings C, Holstein R, et al. Hospitalization rates and characteristics of patients hospitalized with laboratory-confirmed Coronavirus Disease 2019 - COVID-NET, 14 States, March 1-30, 2020. MMWR Morb Mortal Wkly Rep. 2020; 69(15): 458-64.
- Collins EM, Tam PI, Trehan I, Cartledge P, Bose A, Lanaspa M, et al. Strengthening health systems and ımproving the capacity of pediatric care centers to respond to epidemics such as COVID-19 in resource-limited settings. J Trop Pediatr. 2020; 66 (4): 357-65.
- Alonazi A. Effectiveness and acceptability of telerehabilitation in physical therapy during COVID-19 in children: findings of a systematic review. Children (Basel). 2021; 8(12): 1101.
- Badawy SM, Radovic A. Digital approaches to remote pediatric health care delivery during the COVID-19 pandemic: existing evidence and a call for further research. JMIR Pediatr Parent. 2020; 3(1). e20049
- Sobierajska-Rek A, Manski L, Jablonska-Brudlo J, Sledzinska K, Wasilewska E, Szalewsk D. Respiratory telerehabilitation of boys and young men with duchenne muscular dystrophy in the COVID-19 pandemic. Int J Environ Res Public Health. 2021; 18(12): 6179.
- Sobierajska-Rek A, Manski L, Jablonska-Brudlo J, Sledzinska K, Ucinska A, Wierzba J. Establishing a telerehabilitation program for patients with Duchenne muscular dystrophy in the COVID-19 pandemic. Wien Klin Wochenschr. 2021; 133: 344-50.
- Bican R, Christensen C, Fallieras K, Sagester G, O’Rourke S, Byars M. Rapid implementation of telerehabilitation for pediatric patients During COVID-19. Int J Telerehabil. 2021; 13(1): e6371.
- Romano A, Di Rosa G, Tisano A, Fabio RA, Lotan M. Effects of a remotely supervised motor rehabilitation program for individuals with Rett syndrome at home. Disabil Rehabil. 2021; 2021: 1-11.
- Gagnon M, Merlo GM, Yap R, Collins J, Elfassy C, Sawatzky B, et al. Using telerehabilitation to deliver a home exercise program to youth with arthrogryposis: single cohort pilot study. J Med Internet Res. 2021; 23(7): e27064.
- Vilaseca R, Ferrer F, Rivero M, Bersabe RM. Early Intervention services during the COVID-19 pandemic in spain: toward a model of family-centered practices. Front Psychol. 2021; 12: 738463.
- Provenzi L, Grumi S, Borgatti R. Alone with the kids: tele-medicine for children with special healthcare needs during COVID-19 emergency. Front Psychol. 2020; 11: 2193.
- Shah AC, Badawy SM. Telemedicine in pediatrics: systematic review of randomized controlled trials. JMIR Pediatr Parent. 2021;4(1). e22696.
- Camden C, Silva M. Pediatric teleheath: opportunities created by the COVID-19 and suggestions to sustain ıts use to support families of children with disabilities. Phys Occup Ther Pediatr. 2021; 41(1): 1-17.
- Tenforde AS, Borgstrom H, Polich G, Steere H, Davis IS, Cotton K, et al. Outpatient physical, occupational, and speech therapy synchronous telemedicine. Am J Phys Med Rehabil. 2020; 99: 977-81.
- Hall JB, Woods ML, Luechtefeld JT. Pediatric physical therapy telehealth and COVID-19: factors, facilitators, and barriers ınfluencing effectiveness-a survey Study. Pediatr Phys Ther. 2021; 33(3): 112-8.
- Gefen N, Steinhart S, Beeri M, Weiss PL. Lessons learned during a naturalistic study of online treatment for pediatric rehabilitation. Int J Environ Res Public Health. 2021; 18(12): 6659.
- Chuo J, Macy ML, Lorch SA. Strategies for evaluating telehealth. pediatrics. 2020; 146(5): e20201781.
- Kenis-Coskun O, Imamoglu S, Karamancioglu B, Kurt K, Ozturk G, Karadag-Saygi E. Comparison of telerehabilitation versus home-based video exercise in patients with Duchenne muscular dystrophy: a single-blind randomized study. Acta Neurol Belg. 2022; 122(5): 1269-80.
- Kenis-Coskun Ö, Aksoy AN, Kumaş EN, Yılmaz A, Güven E, Ayaz HH, et al. The effect of telerehabilitation on quality of life, anxiety, and depression in children with cystic fibrosis and caregivers: A single-blind randomized trial. Pediatr Pulmonol. 2022; 57(5): 1262-71.
Ailelerin ve Klinisyenlerin Perspektifinden COVID-19 Pandemisinde Özel Gereksinimli Çocuklarda Telerehabilitasyon: Derleme
Öz
COVID-19 salgını, ortaya çıkışından bu yana belirli grupları orantısız bir şekilde etkilemiş, önlemler alındıktan sonra bireyler günlük hayatını ve rutinlerini yeniden düzenlemek zorunda kalmıştır. Yaşlı bireyler arasında COVID-19’un görülme sıklığının daha yüksek olması nedeniyle, savunmasız bir nüfus olan özel gereksinimli çocuklar, pandemi ile ilgili tartışmaların odak noktası olmamıştır. COVID-19 salgınının hızla küresel yayılması, eğitim ve sağlık sistemlerinin yeni stratejiler geliştirmesini ve değişiklikleri deneyimlemesini gerektirmiştir. Sağlık sisteminde birçok kurum hızla yaygınlaşan telesağlık altyapı ve uygulamalarına geçiş yapmıştır. Özel gereksinimli çocuklara yönelik telerehabilitasyon hizmetleri, yüz yüze klinik sağlık hizmetlerine alternatif bir yöntemdir. Telerehabilitasyonun coğrafi engellerin aşılması ve tedavi maliyetlerinin düşürülmesi gibi birçok avantajı vardır ancak düşük kullanım oranı, klinisyenlerin düşük kabul düzeyi, hizmet ödemeleri vb. gibi dezavantajları da mevcuttur. Çalışmamızın amacı, COVID-19 pandemisi sürecinde engelli özel gereksinimli çocuklarda rehabilitasyon uygulamalarına yönelik sorunları ve geliştirilen çözümleri derlemek, pandemi sürecinde yaygın olarak kullanılan telerehabilitasyon uygulamalarını aileler ve klinisyenler açısından incelemek ve alanda çalışan klinisyenler ve araştırmacılara yenilikçi yaklaşım ve stratejilerileri özetlemektir.
Anahtar Kelimeler
Kaynakça
- World Health Organization (WHO) Coronavirus disease (COVID-2019) situation reports (2020) (Internet). Available from: https://www.who.int/emergencies/diseases/novel-coronavirus-2019/situation-reports (cited 2022, April 11).
- Battistin T, Mercuriali E, Zanardo V, Gregori D, Lorenzoni G, Nasato L, et al. Distance support and online intervention to blind and visually impaired children during the pandemic COVID-19. Res Dev Disabil. 2021; 108: 103816.
- Riphagen S, Gomez X, Gonzalez-Martinez C, Wilkinson N, Theocharis P. Hyperinflammatory shock in children during COVID-19 pandemic. Lancet. 2020; 395(10237) :1607-8.
- Gupta S, Smith L, Diakiw A. Avoidance of COVID-19 for children and adolescents and ısolation precautions. Pediatr Clin North Am. 2021; 68(5): 1103-18.
- Patel PD, Cobb J, Wright D, Turer RW, Jordan T, Humphrey A, et al. Rapid development of telehealth capabilities within pediatric patient portal infrastructure for COVID-19 care: barriers, solutions, results. J Am Med Inform Assoc. 2020; 27(7): 1116-20.
- Akcay E, Başgül ŞS. Pandemi ve özel gereksinimi olan/risk altındaki çocuklar. Ercan ES, Yektaş Ç, Tufan AE, Bilaç Ö, editörler, COVID-19 Pandemisi ve Çocuk ve Ergen Ruh Sağlığı, 1. Baskı. Ankara: Türkiye Klinikleri, 2020, p.55-61.
- Phua J, Weng L, Ling L, Egi M, Lim CM, Divatia JV, et al. Asian Critical Care Clinical Trials Group. Intensive care management of coronavirus disease 2019 (COVID-19): challenges and recommendations. Lancet Respir Med. 2020; 8(5): 506-17.
- Doraiswamy S, Abraham A, Mamtani R, Cheema S. Use of telehealth during the COVID-19 pandemic: scoping review. J Med Internet Res. 2020; 22(12): e24087.
- Guide to measuring information and communication technologies (ICT) in education. UNESCO Institute for Statistics. URL: http://uis.unesco.org/sites/default/files/documents/guide-to-measuring-information-and-communication-technologies-ict-in-education-en_0.pdf (accessed 2023-06-16)
- Telemedicine and Telehealth|HealthIT.gov. Available online: https://www.healthit.gov/topic/health-it-initiatives/telemedicine-and-telehealth (accessed on 12 April 2023) .
- Garg S, Kim L, Whitaker M, O’Halloran A, Cummings C, Holstein R, et al. Hospitalization rates and characteristics of patients hospitalized with laboratory-confirmed Coronavirus Disease 2019 - COVID-NET, 14 States, March 1-30, 2020. MMWR Morb Mortal Wkly Rep. 2020; 69(15): 458-64.
- Collins EM, Tam PI, Trehan I, Cartledge P, Bose A, Lanaspa M, et al. Strengthening health systems and ımproving the capacity of pediatric care centers to respond to epidemics such as COVID-19 in resource-limited settings. J Trop Pediatr. 2020; 66 (4): 357-65.
- Alonazi A. Effectiveness and acceptability of telerehabilitation in physical therapy during COVID-19 in children: findings of a systematic review. Children (Basel). 2021; 8(12): 1101.
- Badawy SM, Radovic A. Digital approaches to remote pediatric health care delivery during the COVID-19 pandemic: existing evidence and a call for further research. JMIR Pediatr Parent. 2020; 3(1). e20049
- Sobierajska-Rek A, Manski L, Jablonska-Brudlo J, Sledzinska K, Wasilewska E, Szalewsk D. Respiratory telerehabilitation of boys and young men with duchenne muscular dystrophy in the COVID-19 pandemic. Int J Environ Res Public Health. 2021; 18(12): 6179.
- Sobierajska-Rek A, Manski L, Jablonska-Brudlo J, Sledzinska K, Ucinska A, Wierzba J. Establishing a telerehabilitation program for patients with Duchenne muscular dystrophy in the COVID-19 pandemic. Wien Klin Wochenschr. 2021; 133: 344-50.
- Bican R, Christensen C, Fallieras K, Sagester G, O’Rourke S, Byars M. Rapid implementation of telerehabilitation for pediatric patients During COVID-19. Int J Telerehabil. 2021; 13(1): e6371.
- Romano A, Di Rosa G, Tisano A, Fabio RA, Lotan M. Effects of a remotely supervised motor rehabilitation program for individuals with Rett syndrome at home. Disabil Rehabil. 2021; 2021: 1-11.
- Gagnon M, Merlo GM, Yap R, Collins J, Elfassy C, Sawatzky B, et al. Using telerehabilitation to deliver a home exercise program to youth with arthrogryposis: single cohort pilot study. J Med Internet Res. 2021; 23(7): e27064.
- Vilaseca R, Ferrer F, Rivero M, Bersabe RM. Early Intervention services during the COVID-19 pandemic in spain: toward a model of family-centered practices. Front Psychol. 2021; 12: 738463.
- Provenzi L, Grumi S, Borgatti R. Alone with the kids: tele-medicine for children with special healthcare needs during COVID-19 emergency. Front Psychol. 2020; 11: 2193.
- Shah AC, Badawy SM. Telemedicine in pediatrics: systematic review of randomized controlled trials. JMIR Pediatr Parent. 2021;4(1). e22696.
- Camden C, Silva M. Pediatric teleheath: opportunities created by the COVID-19 and suggestions to sustain ıts use to support families of children with disabilities. Phys Occup Ther Pediatr. 2021; 41(1): 1-17.
- Tenforde AS, Borgstrom H, Polich G, Steere H, Davis IS, Cotton K, et al. Outpatient physical, occupational, and speech therapy synchronous telemedicine. Am J Phys Med Rehabil. 2020; 99: 977-81.
- Hall JB, Woods ML, Luechtefeld JT. Pediatric physical therapy telehealth and COVID-19: factors, facilitators, and barriers ınfluencing effectiveness-a survey Study. Pediatr Phys Ther. 2021; 33(3): 112-8.
- Gefen N, Steinhart S, Beeri M, Weiss PL. Lessons learned during a naturalistic study of online treatment for pediatric rehabilitation. Int J Environ Res Public Health. 2021; 18(12): 6659.
- Chuo J, Macy ML, Lorch SA. Strategies for evaluating telehealth. pediatrics. 2020; 146(5): e20201781.
- Kenis-Coskun O, Imamoglu S, Karamancioglu B, Kurt K, Ozturk G, Karadag-Saygi E. Comparison of telerehabilitation versus home-based video exercise in patients with Duchenne muscular dystrophy: a single-blind randomized study. Acta Neurol Belg. 2022; 122(5): 1269-80.
- Kenis-Coskun Ö, Aksoy AN, Kumaş EN, Yılmaz A, Güven E, Ayaz HH, et al. The effect of telerehabilitation on quality of life, anxiety, and depression in children with cystic fibrosis and caregivers: A single-blind randomized trial. Pediatr Pulmonol. 2022; 57(5): 1262-71.
Toplam 29 adet kaynakça vardır.
Ayrıntılar
| Birincil Dil | İngilizce |
|---|---|
| Konular | Sağlık Kurumları Yönetimi |
| Bölüm | Derlemeler |
| Yazarlar | |
| Yayımlanma Tarihi | 16 Ocak 2024 |
| Gönderilme Tarihi | 23 Aralık 2022 |
| Yayımlandığı Sayı | Yıl 2024 Cilt: 14 Sayı: 1 |
